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Registration Now Open for Las Vegas Hemophilia Walk & 5K to Support Inherited Bleeding Disorder Community

July 15, 2017 by  

Registration Now Open for Las Vegas Hemophilia Walk & 5K to Support Inherited Bleeding Disorder Community
Walkers, runners, individuals, teams, families, and kids are invited to take part in the Las Vegas Hemophilia Walk & 5K to support the inherited bleeding disorder community in Las Vegas on Saturday, September 23, 2017 at Floyd Lamb Park at Tule Springs

The Las Vegas Hemophilia Walk & 5K helps raise funds for the Nevada Chapter of the National Hemophilia Foundation’s efforts to help promote awareness and improve the quality of care and life for people living with hemophilia, von Willebrand disease and other inherited bleeding disorders.

Register now for this event at: www.hfnv.org. On the day of the walk/run, registration and check-in starts at 7:30 a.m. at Floyd Lamb Park, located at 9200 Tule Springs Rd., Las Vegas, 89131. The walk and run begin at 8:30 a.m. Attendees will enjoy a light pre-walk breakfast, music, activities for children and a team t-shirt contest. Admission to Floyd Lamb Park is free for all walk participants.

All funds raised through the event will stay in Nevada, with the majority of proceeds being used to send children with inherited bleeding disorders —- along with siblings — to a special, medically supervised summer camp at no cost. Camp Independent Firefly offers kids, aged 7 to 17, the chance to interact with others like themselves and to feel supported while also learning independence in how they live with their life-long condition, for which there is no cure.

“Camp Independent Firefly is a wonderful asset because it offers these kids the kind of freedom they usually don’t have,” said Anne McGuire, Chapter Events Manager for the Nevada Chapter of the National Hemophilia Foundation. “So often, kids with inherited bleeding disorders are discouraged from being too active due to concerns about their safety or causing a possible bleed. With medical staff on site the entire week, Camp Independent Firefly is a safe and uplifting place filled with adventure.”

For more information about the event or registration, please contact Anne McGuire at amcguire@hemophilia.org or visit www.hfnv.org.

Inherited Bleeding Disorders Facts:

  • More than 20,000 families in the United States are affected by inherited bleeding disorders
  • Those with inherited bleeding disorders lack a protein that allows their blood to clot normally
  • To control bleeds, a medicine called factor is often infused
  • Hemophilia is most often passed from mother to son, but girls can also be affected
  • Von Willebrand disease affects males and females equally
  • One percent of the population is affected by von Willebrand disease, but one in 50 people may not know they have it

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